A child in our family has ALD. How do we know if he is a candidate for transplant?
Frequently Asked Questions - FAQsIn general, boys are candidates for transplant if they have visible lesions on an MRI, but are showing no neurological symptoms, or at most early symptoms. Boys with an MRI Loes score less than 8 or 9 are usually considered suitable for transplantation.
Related QuestionsHow do I know I am a candidate for hair transplant?
Frequently Asked Questions: Hair RestorationIf you are starting to thin, balding, or completely bald, you are a candidate for hair transplant surgery. Those who have been losing hair for a few years at a moderate to dramatic rate should consider hair transplant, as it is the only permanent solution to hair loss.
Related QuestionsA child in our family was just diagnosed with ALD, what are the first things we should do?
Frequently Asked Questions - FAQsGet a magnetic resonance imaging (MRI) scan of the child's brain. This will tell you the extent of the progression of the disease, and determine next steps. It will also provide a baseline for you and physicians to use to compare with future MRI scans, which are generally performed at 6 ? 12 month intervals. Have your child tested for adrenal insufficiency (Addison's disease). This is usually done by a pediatric endocrinologist. Addison's disease is generally associated with ALD.
Related QuestionsHow do we know if our boy is a candidate for transplant?
Frequently Asked Questions - FAQsIn general, boys are candidates for transplant if they have visible lesions on an MRI, but are showing limited or no neurological symptoms. Boys with an MRI Loes score of less than 8 or 9 are usually considered suitable for transplantation.
Related QuestionsWhat if I am not a good candidate for organ transplant?
Organ Transplant, SVCMC; New York NYIf you are told that you are not a good candidate for organ transplant, find out if there are other treatments for your condition. Many people can live for years with serious health conditions. If transplantation is not an option, the goal of your care may shift to maintaining your comfort. Talk to your loved ones about the type of care you would like to receive. Discuss their expectations as well as your wishes, care needs, finances, and the needs of your family.
Related QuestionsWill my child need a transplant?
Frequently Asked QuestionsIt is likely at some point kidney transplantation will be needed, but this varies greatly to very early in life to later in life. It all depends on the rate of decline of kidney function.
Related QuestionsWill people know I had a hair transplant?
Common hair loss questions and answers.Immediately following surgery a patient’s recipient area is typically pink with scabs forming around the micro incisions. These hundreds of tiny incisions will heal rapidly within a week to ten days. During the first few days after the surgery a person’s hair transplants will be noticeable if there is no previous hair to mask these temporary scabs. However, most patients feel comfortable being in public without wearing a hat within 5 to 7 days following surgery.
Related QuestionsHow do I know if my insurance will pay for a transplant?
Frequently Asked QuestionsMost of the insurance plans discussed in Question #1 cover transplantation and dialysis. You should contact your insurance carrier with questions about your own coverage. If you qualify for Medicare only because of kidney failure, it remains in effect for three years after transplant. Medicare will pay 80% for immunosuppressive (anti-rejection) drugs for 36 months after transplant.
Related QuestionsWhat is the prognosis and life expectancy for a child with ALD?
Frequently Asked Questions - FAQsThe onset of childhood cerebral ALD is usually between ages four and ten years. The prognosis is generally poor, particularly if the disease is not correctly diagnosed before significant symptoms develop. Many of these children die within one and ten years of the onset of symptoms. There are some treatment options (Lorenzo's oil and stem cell transplants) that may alter this prognosis, but they are not guarantees.
Related QuestionsIf any person in the family has ALD, AMN, or is a carrier, who else in the family should be tested?
Frequently Asked Questions - FAQsIt depends on their relationship to the person who has ALD. For example, if a boy has ALD, his mother should be tested for the mutation, as should all of his siblings. His mother's siblings-especially sisters-should be tested as well, since they may also have inherited the ALD mutation and be at risk for passing it on to their children. Genetic counselors can best advise you as to who in your family should be tested.
Related QuestionsIs transplant always the best goal for a child with renal failure?
InfoHowever, there may be circumstances when an extended period of dialysis is preferred before transplantation is undertaken.
Related QuestionsHow do I know if I am a candidate for GreenLight?
Enlarged Prostate ? Get the GreenLight BPH treatmentOnly your urologist can determine if you are a candidate, based upon your history & physical examination, as well as his clinical judgment. Karatas OF, Tasci A, Tugcu V. Erectile functions in BPH patients after photoselective vaporisation of the prostate laser surgery. Eur Urol 2006;5(2 suppl.):272 abstract 997. EAU Meeting, Apr 5-8,2006 Paris, France. Malek RS, Kuntzman RS, Barrett DM. High power potassium-titanyl-phosphate laser vaporization prostatectomy. J Urol. 2000 Jun;163(6):1730-3.
Related QuestionsHow do I know if I am a candidate for Tarceva?
Lung Cancer Frequently Asked Questions - Tarceva.comIf you have locally advanced or metastatic NSCLC and have received at least one chemotherapy regimen that has not worked, you may be a candidate for Tarceva. Speak with your doctor about whether Tarceva is right for you.
Related QuestionsHow do I know if I'm a candidate for UAE?
Fibroid Frequently Asked QuestionsUrinary frequency or other bladder symptoms caused by compression of the bladder by fibroids or compression of the ureters, which can cause hydronephrosis.
Related QuestionsHow do I know if I am a candidate for this surgery?
Unicondylar Knee ReplacementCandidates for this surgery are generally younger, more active patients. The partial knee replacement allows for symptoms of pain or discomfort. The procedure allows younger patients to buy time before they need a full knee replacement. The procedure is also effective for older patients if they have disease localized to one half of the joint.
Related QuestionsHow do I know if I am a candidate for SVR?
Congestive Heart FailureIf you have previously had a heart attack or have coronary artery disease and are experiencing shortness of breath during physical activity, feeling tired or weak, and having difficulty performing everyday activities you may be a candidate for SVR Surgical Ventricular Restoration. Ask your doctor for more information.
Related QuestionsHow do I know if I am a candidate for PVP?
ADC Urology Greenlight PVPOnly Dr. Shaw can determine if you are a candidate, based upon your history & physical examination, as well as his clinical judgment.
Related QuestionsHow do I know if I am a candidate for these treatments?
Frequently Asked Questions - About Us - Ke Ala IkeDrs. Jenkins and Omphroy performed the first laser refractive surgeries in the islands and have continued to stay in the forefront of the technology curve. They are trained in all these procedures using the most advanced equipment available in Hawaii and will select what is appropriate for each patient. To explore your options, please contact us or take our online quiz.
Related QuestionsHow do I know if I am a candidate?
faqA comprehensive eye examination with dilation of the pupils will provide enough information to determine if you could be considered for a second opinion consult.Dr. Kohansby performs all the necessary testing as part of a comprehensive eye examination.
Related QuestionsIf our boy is not a candidate for a transplant, what other options exist?
Frequently Asked Questions - FAQsUnfortunately, once the "transplant" window has closed, there are few other treatment options available. A preliminary study at University of Minnesota is demonstrating promising results in a small number of patients with advanced disease (please see "on the Horizon" section). Other treatments are palliative care-in other words, they cannot alter the course of the disease, but only make life as comfortable as possible for the patient and his family.
Related QuestionsWho is a good candidate for hair transplant surgery?
Frequently Asked Hair Transplant QuestionsCandidates for hair transplant surgery include men and women who are physically healthy, realistic in their goals, and have healthy hair growth to serve as donor hair. Any pre-existing medical conditions should be mentioned at the time of consultation as these may help to determine candidacy for the procedure.
Related QuestionsWho is a candidate for a kidney transplant?
Kidney Transplantation faqs Patel Hospital Jalandhar Punjab ...Any patient whose kidneys have permanently stopped working is a potential candidate for a kidney transplant. However, many factors must be considered in choosing between transplantation and chronic dialysis for a given individual. Among these factors are age, other medical problems, and personal considerations of work and lifestyle. You should discuss the options with your doctor and attempt to obtain as much information as possible in reaching your decision.
Related QuestionsHow will I know if I have been accepted for transplant?
FAQ'sYou will be told as soon as possible after assessment either at the hospital or very soon after your return home.
Related QuestionsWhat do I need to know before having an organ transplant?
Organ Transplant, SVCMC; New York NYIt is natural for your immune system to destroy invading foreign substances in order to fight off infection and disease. Basically, an organ transplant is contrary to nature. When a new organ is placed into your body, your immune system sees it as foreign and tries to destroy it. Organ transplantation results in a new disease called rejection. The most important weapons to fight this new disease are antirejection medicines that prevent your immune system from attacking the donor organ.
Related QuestionsQ Someone has made a report of child abuse or neglect against my family. What do I need to know?
CYF/Hub Frequently Asked QuestionsA Answers to this question and others are provided in this Child Protection Services Guide Child Protection Services -- A Guide for Parents [pdf, 66Kb] A This is the very reason the Larimer County Hub exists. Services can be accessed 24 hours a day, 7 days a week by calling (970) 498-6990. Our staff is always available to offer support and options for how to proceed when you family is struggling.
Related QuestionsHow do I know whether to get therapy for myself, my child, my relationship, or my family?
Associated Counselors - Providing Individual, Couple, Family...your child is showing signs of anxiety, irritability, sadness, hopelessness, poor self regard, school problems, fighting, etc.
Related QuestionsWhen will I know if I can have a transplant?
Barnes-Jewish Hospital - FAQOnce the testing is complete, the members of the transplant team will review all of the information from your testing. Following this meeting, one of the transplant coordinators will contact you to discuss your findings and our recommendations. If the transplant team decides that a transplant is your best option, you will be given the opportunity to go on the UNOS waitlist for a heart transplant.
Related QuestionsWould the transplant recipient ever know who the donor was?
Organ Donor Foundation - FAQNo. Confidentiality is always maintained except in the case of living donors, where transplants are done within the same family. Recipients may write letters of gratitude, which will be passed on and are really appreciated by the donor family.
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