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Frequently Asked Questions

Does Hirschsprung's Disease have anything to do with Spina Bifida?

Kimbers Spina Bifida Site: Frequently Asked Questions
No. It is possible to have both at the same time. As far as I know there has not been many cases that have both. To get more information on Hirschsprung's Disease (HD) you can visit http://hd.cjscreations.com
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What is Spina Bifida?

Frequently Asked Questions
Spina Bifida is a failure of the lamina to close. The spectrum is dramatic from babies born with open spinal canals to adults with trivial defects seen on x-rays. Most late found defects are trivial. You might want to visit the web site: http://www.infohiway.com/spinabifida/. It lists the various Spina Bifida Organizations around the United States.
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Spina Bifida Association Houston Gulf Coast
Spina bifida is the most frequently occurring permanently disabling birth defect. It affects approximately one out of every 1,000 newborns in the United States. Spina bifida, the most common NTD, is one of the most devastating of all birth defects. It results from the failure of the spine to close properly during the first month of pregnancy. In severe cases, the spinal cord protrudes through the back and may be covered by skin or a thin membrane.
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What are spina bifida and anencephaly?

Birth Defects Resources: Folic Acid & Spina Bifida Frequentl...
Spina bifida and anencephaly are birth defects that occur in the first four weeks of pregnancy, before most women know that they are pregnant. Because about half of all pregnancies are unplanned, it is important to include 400 micrograms of folic acid in every childbearing age woman's diet. Spina bifida occurs when the lower end of the neural tube fails to close. Thus, the spinal cord and back bones do not develop properly.
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Can anything be done to prevent spina bifida?

Spina Bifida Association Houston Gulf Coast
Birth defects can happen in any family. Many things can affect a pregnancy, including family genes and things women may come in contact with during pregnancy. Recent studies have shown that folic acid is one factor that may reduce the risk of having an NTD baby. Taking folic acid cannot guarantee having a healthy baby, but it can help. Taking folic acid before and during early pregnancy reduces the risk of spina bifida and other neural tube defects.
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Where can I find more information on Spina Bifida?

Kimbers Spina Bifida Site: Frequently Asked Questions
If you would like to find more information on Spina Bifida please visit our links pages. Resource sites has much information that is related to SB. If you are interested in getting more information from other parents or want to read more about SB from people that have then we suggest visiting our Personal Pages link.
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What are the types of Spina Bifida?

Kimbers Spina Bifida Site: Frequently Asked Questions
This is a very mild and common form and very rarely causes disability. There is usually a slight deficiency in the formation of one of the vertebrae. It can take the form of a dimple or small hair growth on the back. However, many people are unaware that they have spina bifida occulta as they display absolutely no symptoms of the condition.
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WHAT IS SPINA BIFIDA AND HOW DOES IT OCCUR?

Winnebago County Health Department - FAQ's
Spina bifida is a birth defect resulting from the incorrect development of the spinal cord that can leave the spinal cord exposed. Spinal bifida occurs when the spine and back bones do not close all the way. When this happens, the spinal cord and back bones do not form as they should. A sac of fluid comes through an opening in the baby's back. Much of the time, part of the spinal cord is in this sac and it is damaged.
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What is the first step in establishing eligibility for VA spina bifida healthcare benefits?

FAQ Frequently Asked Questions
Since VA spina bifida healthcare benefits are based upon eligibility determinations made by VA regional offices, prospective beneficiaries must first contact a regional office to obtain an Application for Spina Bifida Benefits (VA Form 21-0304). The local VA regional office can be contacted toll-free at 1-800-827-1000. Upon return of a completed application, the regional office will determine eligibility and notify the applicant of the determination.
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How do I tell if my child has Spina Bifida?

Kimbers Spina Bifida Site: Frequently Asked Questions
There is a test that you can have done while you are pregnant that will tell you if your child has Spina Bifida. Otherwise you will be told as soon as your child is born.
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Are any VA benefits available for children of Vietnam veterans born with spina bifida?

FAQ Frequently Asked Questions
Congress authorized the benefits because of evidence linking the illness to a parent’s exposure to the herbicide Agent Orange. VA recently created a toll-free number where people can receive information about the spina bifida program. The number is 1-888-820-1756. Children of Vietnam veterans born with spina bifida are eligible a monthly disability allowance and for vocational training.
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What exactly is 'spina bifida' ?

aarogya.com "The Wellness Site" - International Da...
incomplete closure of the spinal column that occurs before your baby is born, spina bifida leaves a baby's legs weak or paralyzed. In the most severe form, other possible problems include excessive fluid around the brain, difficulty with bowel and bladder control, deformities of the hips, knees, and feet, and learning disabilities. While children with spina bifida can live a normal lifespan, they need care by a team of specialists.
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of the cases of spina bifida. What does a "screen-positive" result mean?

Maternal Serum AFP Screening, Womens Clinic of Seattle, Seat...
The risk of Down's syndrome is increased. This means that the risk of having a pregnancy with Down's syndrome at the time of testing, taking into account the woman's age as well as her blood levels of AFP, uE3 and hCG, is 1 in 195 or more. There is an increased risk in the pregnancy of neural tube defect. The level of AFP in the mother's blood is more than two and a half times the normal value. A screen positive result does not mean that there is an abnormality.
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What is Hirschsprung's disease?

Quality Health | Hirschsprung's Disease
Hirschsprung's disease (congenital aganglionic megacolon) is a birth defect in which nerve cells in the wall of the colon (large intestine ) do not develop. These nerve cells, called ganglion cells, control the muscles of the colon that normally push food and digestive waste through the large intestine. In Hirschsprung's disease, the muscles in the wall of the colon do not contract properly, preventing waste from moving through the colon.
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Health Information
Hirschsprung's disease occurs when some of the nerve cells that are normally present in the intestine do not form properly while a baby is developing during pregnancy. food is digested, muscles move food forward through the intestines in a movement called peristalsis. When we eat, nerve cells that are present in the wall of the intestines receive signals from the brain telling the intestinal muscles to move food forward.
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My child has Spina Bifida. Is there anything to fear?

Answers to Your Questions
Spina Bifida patients are especially vulnerable to class I latex allergy. Be sure to inform your orthodontist that your child has Spina Bifida before your child starts orthodontic treatment. Reuse of orthodontic products is a continuing problem. It has been estimated that as many as one US orthodontist in three "recycles" some of their materials from one patient's mouth to the next patient's mouth.
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Why are we studying spina bifida?

C.H.A.T.S.
Children and teenagers with spina bifida face a variety of issues in their daily lives that, at times, can be challenging for them (as well as their families) to manage. Through our research study, we are trying to better understand ways in which families cope with these issues, as well as ways in which medical professionals, psychologists, and professional organizations might be able to assist families.
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My child has Spina Bifida. Do I have a case?

Spina Bifida Prevention Network - Frequently Asked Questions
It depends. The lawyers at Feldman, Shepherd, Wohlgelernter, Tanner & Weinstock will investigate your particular facts in order to determine whether you have a case if you contact them. There will be no charge for the consultation or investigation. Feldman, Shepherd, Wohlgelernter, Tanner & Weinstock has lawyers who are licensed to practice in Pennsylvania, New Jersey, New York and Texas.
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FAQs, Folic Acid, NCBDDD, CDC
Spina bifida (spi-na bif-a-da) and anencephaly (an-en-sef-a-lee) are two common types of NTDs. About 3,000 pregnancies in the United States are affected by spina bifida or anencephaly each year. Many of these defects could be prevented if all women got enough of the B vitamin folic acid every day starting before they get pregnant. Spina bifida occurs when the spine and back bones do not close all the way. When this happens, the spinal cord and back bones do not form as they should.
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How do I know if I have Hirschsprung's ?

Frequently asked Questions about Hirschsprung's Disease
HD usually is suspected based on symptoms and a physical exam. During the physical exam, your health professional will check your child's abdomen for bloating and excessive stool in the intestines and rectum. Rectal biopsy. This is the most useful test for diagnosing Hirschsprung's disease. For this test, a small piece of rectal tissue is removed and examined under a microscope for the presence of nerve cells. If nerve cells are not present, Hirschsprung's disease is diagnosed. Barium enema.
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Is Hirschsprung's curable?

Frequently asked Questions about Hirschsprung's Disease
One you are diagnosed with Hirschsprung's Disease in my opinion and many other it is always with you. However with some medical Insurance Companies if you have had a surgery where the problem has been corrected (in this case usually severe, continuous constipation), you can report that as corrected if you have had a surgery for an ostomy or even a reversal of an ostomy.
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