Who is the official spokesperson for The ALS Association?
Media Frequently Asked Questions - The ALS AssociationThe ALS Association relies on a variety of spokespeople to tell the ALS "story." In addition to clinical and scientific experts on staff, we often turn to our many friends and partners in the medical and scientific fields to help convey an understanding of the many fronts on which The ALS Association is fighting this disease.
Related QuestionsHow can people get more information about ALS and The ALS Association?
Media Frequently Asked Questions - The ALS AssociationThe ALS Association has a toll-free information and referral service available to patients, caregivers and family members, staffed by The ALS Association Patient Service Coordinators. The ALS Association Information and Referral number is 1-800-782-4747. To reach The ALS Association's Patient Services department by e-mail, contact alsinfo@alsa-national.org.
Related QuestionsWhat Is ALS?
Patient Services Frequently Asked Questions - The ALS Associ...Amyotrophic Lateral Sclerosis (ALS) is a motor neuron disease, first identified in 1869 by the noted French neurologist Jean-Martin Charcot. Although the cause of ALS is not completely understood, the 1990's have brought a wealth of new scientific understanding about the physiology of this disease.
Related QuestionsMedia What is The ALS Association?
Media Frequently Asked Questions - The ALS AssociationThe ALS Association is the only national not-for-profit health agency dedicated solely to the fight against ALS. The mission of The ALS Association is to find a cure for and improve living with amyotrophic lateral sclerosis.
Related QuestionsWhere is The ALS Association located?
Media Frequently Asked Questions - The ALS AssociationThe ALS Association's National Office is headquartered in Calabasas Hills, California. The Association has a nation-wide network of chapters and several dozen free standing support groups located throughout the United States carrying out the mission and activities of the organization at the local level. The ALS Association has representation in over 50 of the major markets in the United States.
Related QuestionsWhat is an ALS Association CenterSM?
Media Frequently Asked Questions - The ALS AssociationThe nationwide network of 19 certified ALS Association CentersSM are distinguished regional centers that have been recognized by The ALS Association as the best in the field with regard to knowledge about and experience in ALS. To become certified as an ALS Association CenterSM, an ALS clinic must achieve national prominence, meet rigorous clinical care standards, and pass a comprehensive site inspection.
Related QuestionsWho oversees the work of The ALS Association?
Media Frequently Asked Questions - The ALS AssociationNational Board of Trustees, composed of noted leaders in business, science, law and medicine from around the U.S. with a dedication to help find answers to ALS. Chapter Board of Trustees, composed of individuals who represent the local community in which they serve. Medical Advisory Committee composed of neurologists and multidisciplinary team professionals representing such areas as nutrition, physical therapy and pulmonology.
Related QuestionsWhat is the association's official language?
KGNetwork e.V.Due to the member structure the official language is German, which is being used especially for announcements, discussions, presentations of and for members, the KGN website as well as all minutes and accounting. However KGN promotes the Korean language (e.g. by means of guest lectures in Korean with German handouts). It is one of the association's aim to maintain important documents like the association's bylaws and presentations also in Korean and English.
Related QuestionsWhat Is ALS/MND?
Frequently Asked QuestionsAmyotrophic Lateral Sclerosis, a.k.a Motor Neuron Disease-is a rapidly progressive, fatal neuromuscular disease. It attacks motor neurons in the spinal cord and lower brain which transmit signals from the brain to the voluntary muscles throughout the body. When motor neurons die as a result of ALS, the ability of the brain to control muscle movement is lost. When muscles fail to receive messages, they weaken, atrophy, and die. There is no known cure.
Related QuestionsHow Is ALS Diagnosed?
Frequently Asked Questionspresent there is no definitive means of diagnosis of ALS/MND. Most diagnoses are made by eliminating all other possibilities--ailments whose symptoms resemble those of ALS/MND. Neurologists use a number of clinical tests to establish a profile, including blood testing, EMG, MRI, etc;
Related QuestionsIs ALS painful?
Frequently Asked QuestionsSome of the pain ALS may cause are pressure sores, muscle aches or cramps, swelling feet, and muscle contractions.
Related QuestionsWhat assets can I use to make a gift to The ALS Association?
Gift Planning - The ALS AssociationGenerally speaking, during your lifetime you can make an outright gift of cash, securities or other property (e.g., real estate, personal property). Through your will or with a distribution from a retirement plan or life insurance policy, your gift can be designated to The ALS Association in accordance with your wishes.
Related QuestionsWhat is ALS - ALS Descriptioncurren; back to top ¤ALS stands for Amyotrophic Lateral Sclerosis, sometimes called Lou Gehrig's disease. It is a rapidly progressive and fatal neuromuscular disease that is characterized by degeneration of a select group of nerve cells and pathways (motor neurons) in the brain and spinal cord. This loss of motor neurons leads to progressive paralysis of the voluntary muscles. The heart is not a voluntary muscle, and therefore, remains unaffected by the disease.Related Questions
Where do I find someone to be my online spokesperson?
Bring LIFE to the web....with website video.We have a growing list of actors who are willing and able to be your online spokesperson. Click on the actors link to view some of their samples.
Related QuestionsAre there minimums that must be met to establish a charitable gift annuity with The ALS Association?
Gift Planning - The ALS AssociationYes. The minimum gift amount for a charitable gift annuity is $10,000, and annuitants must reach age 60 before annuity payments can begin. Thus. immediate gift annuities can only be established for annuitants age 60 and older. Deferred gift annuities can be established by someone at any age but annuity payments cannot begin until the annuitant has reached age 60.
Related QuestionsAmyotrophic Lateral Sclerosis ALS: rockin for a cureAmyotrophic Lateral Sclerosis (ALS) is a fatal neuromuscular condition characterized by progressive muscle weakness, muscle wasting, fasciculations and increased reflexes, resulting in total paralysis of all voluntary muscles. ALS is a rapidly progressive, fatal neuromuscular disease that attacks motor neurons in the spinal cord and lower brain, which transmit signals from the brain to the voluntary muscles throughout the body.Related Questions
Patient Services What Is ALS?
Patient Services Frequently Asked Questions - The ALS Associ...Amyotrophic Lateral Sclerosis (ALS) is a motor neuron disease, first identified in 1869 by the noted French neurologist Jean-Martin Charcot. Although the cause of ALS is not completely understood, the 1990's have brought a wealth of new scientific understanding about the physiology of this disease.
Related QuestionsWhat Are The Symptoms Of ALS/MND?
Frequently Asked QuestionsThe groups of muscles affected and the order in which they are affected varies from one person to another. Early symptoms usually include tripping, dropping things, abnormal fatigue of the arms and/or legs, slurred speech, muscle cramps and twitches and uncontrollable periods of laughing or crying. The hands and feet may be affected first, causing difficulty in walking or using the hands for the activities of daily living such as dressing, washing and buttoning clothes.
Related QuestionsWho Is Liable To Get ALS/MND?
Frequently Asked QuestionsAnyone can get ALS/MND. Most who develop ALS/MND are between the ages of 40 and 70. There are, however, cases of the disease attacking persons in their twenties and thirties. Generally though, ALS/MND occurs in greater percentages as men and women grow older. ALS/MND strikes men slightly more frequently than women. About one in 800 adult men, and one in 1,200 adult women die of ALS/MND. ALS/MND occurs throughout the world with no racial, ethnic or socioeconomic boundaries.
Related QuestionsAre There Different Types Of ALS/MND?
Frequently Asked QuestionsThere are three common classifications, and numerous sub-categories: Sporadic: the most common form of ALS/MND Familial: less than 10% of ALS/MND cases suggest genetic inheritance Guamanian: a high number of cases of ALS/MND occur in Guam and the Trust Territories of the Pacific
Related QuestionsWhat Causes ALS/MND?
Frequently Asked QuestionsThe cause of ALS/MND is not yet known. While many theories are being researched, at present neither a cure nor a means of prevention is known. In 1993, scientists announced in a paper published in the British journal "Nature" that they had isolated the gene associated with about 20% of the cases of the inherited form of the disease.
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