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Frequently Asked Questions

How is CFS diagnosed?

GWVRP: Document Detail
When evaluating patients with chronic fatigue of unknown origin, physicians can use the following definition of CFS as a guide. This detailed definition was developed for research use under the leadership of the Centers for Disease Control. It was published in the "Annals of Internal Medicine" in March 1988. Because the disease is still poorly understood, however, the outlined criteria should be considered provisional.
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What would you say to someone who's been newly diagnosed with ME/CFS or FMS?

ME/ Chronic Fatigue Syndrome And Fibromyalgia - Share Your E...
TIP: You can wrap a word in square brackets to make it appear bold. For example [my story] would show as my story on the Web page containing your story. Do you have a photo of yourself to add? Great! Click the button and find it on your computer. Then select it. Click below to see contributions from other ME/ Chronic Fatigue Syndrome and Fibromyalgia sufferers... Post Viral Fatigue Syndrome - A Year and a Half in Hell This is my story of living with Post Viral Fatigue Syndrome..
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FM/CFS/ME RESOURCES - FAQ's About FM/CFS/ME
ANSWER: Doctors find it difficult to diagnose CFS because it has the same symptoms as many other diseases. When talking with and examining you, your doctor must first rule out diseases that look similar, such as multiple sclerosis and systemic lupus erythematosus in which symptoms can take years to develop. In follow-up visits, you and your doctor need to be alert to any new cues or symptoms that might show that the problem is something other than CFS.
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Chronic Fatigue Syndrome
There are no tests for CFS. Doctors can diagnose it only by ruling out other possible causes of your fatigue. Many other health problems can cause fatigue, and most people with fatigue have something other than chronic fatigue syndrome.
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Can CFS be diagnosed through a blood test, a brain scan, a brain biopsy or any diagnostic test?

GWVRP: Document Detail
There is no blood test, no x-ray and no laboratory test that is diagnostic of CFS yet. CFS is diagnosed by careful history, previous medical record examination, exclusion of certain illnesses, exclusion of primary depression and by following, as carefully as one can, the CDC guidelines without adding numerous other symptoms common to many other illnesses.
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Is ME/CFS One Illness... Or More?

About Fibromyalgia, Chronic Fatigue Syndrome, Post Viral Fat...
Those are just a few pages from the large ME/ Chronic Fatigue Syndrome section. To check out the main CFS/ME section, click here!
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Is there a cure for CFS/ME?

About Fibromyalgia, Chronic Fatigue Syndrome, Post Viral Fat...
As of yet, no universal cure has been found for CFS/ME. But there are medicines, supplements and therapies that seem to have helped some CFS/ME sufferers. Interestingly though, what works for one sufferer may not necessarily work for another. So the key is to read up on what’s available and to consult with your doctor before spending lots of cash on something that may or may not be suitable for you.
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Who are the authorities on CFS?

GWVRP: Document Detail
Any clinician *should* be able to diagnose it -- beware of having to "fly away" to an authority who will diagnose and treat CFS.
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What are the myths about CFS?

GWVRP: Document Detail
That it is all in your mind; if you would just rest more, you could be well; if you would eliminate some stress, you would be better, etc.
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What is the misinformation about CFS?

GWVRP: Document Detail
That it can be cured, prevented, that it causes cancer, AIDS, etc. Solid scientific research should address all avenues and fact, NOT FICTION, should be reported to the public. Also, there is not a good patient data base, thus "hyped" estimates of patients only tend to create panic and threats of an epidemic which have no basis in fact.
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What causes CFS?

Chronic Fatigue Syndrome
No one knows for sure what causes CFS. Many people with CFS say it started after an infection, such as a cold or stomach bug. It also can follow a bout of infectious mononucleosis (mono), the “kissing disease” that drains your energy. Some people with CFS say it started after a time of great stress, such as the loss of a loved one or major surgery. It can be hard to figure out if a person has CFS because extreme tiredness is a common symptom of many illnesses.
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What are the signs of CFS?

Chronic Fatigue Syndrome
The signs of CFS can come and go or they can stay with a person. At first, you may feel like you have the flu. As well as extreme tiredness and weakness, CFS symptoms include: Many people with CFS report other symptoms too, ranging from a constant cough to feelings of depression. If you think you may have CFS, talk to your doctor.
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How is CFS treated?

Chronic Fatigue Syndrome
Right now, there is no cure for CFS. But there are things you can do to feel better. Talk to your doctor about ways to ease your symptoms and deal with your tiredness. You might also try these: Try to stop or do less of the things that seem to trigger your tiredness. For a week or two, write down what you do each day and note when you feel really tired. Then, look over this list to find out which activities tend to tire you out.
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What can I do to cope with CFS?

Chronic Fatigue Syndrome
It’s normal to feel cranky, sad, angry, or upset when you have an illness like CFS. Here are some things you can do that may help you to feel better: See the "For more information..." section at the end of this FAQ for a list of organizations that can help you cope with CFS. Join a CFS support group. Sometimes it helps to talk with people who are going through the same thing.
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How it is diagnosed?

Laparoscopy Hospital - Frequently asked questions about lapa...
Several ways have been suggested to diminish the diagnostic error that occurs if diagnosis is based solely on the clinical picture of suspected appendicitis. In fact appendicitis is a disease, which can mimic most of the causes of abdominal pain as well as some of the chest diseases. Despite new x-ray techniques, CT scans and ultrasounds, the diagnosis of appendicitis can be quite challenging.
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Vulvodynia: Vulvar Pain Clinics: FAQ's Vestibulitis, Vestibu...
Exquisite sensitivity of the tiny gland openings at the entrance of the vagina, to light touch with a cotton-tipped applicator, is the typical diagnostic feature of Vulvodynia. This is called the “touch test.” About two thirds of patients with Vulvodynia have visible, red tiny spots at these points. For the remainder of patients, a doctor may detect inflamed surface blood vessels with a colposcope, which is a magnifying instrument.
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Arthritis NSW | Education | Frequently Asked Questionsa abou...
Each year a large number of people visit their General Practitioner (GP) with symptoms such as back pain, neck pain, muscle pain or swollen and painful joints. Often, these symptoms are not severe and may last just a few days, in which case the GP will provide advice or treatment and allow the problem to resolve. But, if the pain persists or is severe, your GP may decide to refer you to a specialist in musculoskeletal diseases.
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Vanishing Twin Syndrome - Answers to Frequently Asked Questi...
Here's a typical scenario: A mother undergoes a routine ultrasound early in her pregnancy, for example at six or seven weeks gestation. Two fetuses are detected. The mother is told she is having twins. When the mother returns to the doctor six weeks later, only one heartbeat can be heard with a Doppler scan. Another ultrasound is performed. Only one fetus is identified.
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EndoFAQ
The only way a positive diagnosis of Endo can be made currently is via surgery, either a laparoscopy or the more invasive laparotomy, where biopsies are taken from suspected sites. It can also be visualized during surgery if the surgeon knows what to look for. Ultrasounds, MRIs, CT Scans and other diagnostic tests are not conclusive. The ERC does not support "medical diagnoses," such as administering GnRH therapy prior to a surgical diagnosis.
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PROLEUKIN® (aldesleukin): FAQs About Kidney Cancer
Kidney cancer is usually diagnosed using magnetic resonance imaging (MRI) or ultrasound imaging, or by tissue biopsy. (Please see Kidney Cancer Diagnosis for more information.)
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What are M.E., CFS, PVFS, and CFIDS?

About Fibromyalgia, Chronic Fatigue Syndrome, Post Viral Fat...
Sure you can get the clinical and medical definitions - but that doesn't really help much if you want to know what it's really like. So here are a few pages that might help you get to grips with what this illness (or group of illnesses) is really about:
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Is CFS/ME all in the mind? Or is it real?

About Fibromyalgia, Chronic Fatigue Syndrome, Post Viral Fat...
No it's not all in your mind! There's a whole sub-section dedicated to this, and to the medical scepticism that CFS/ME sufferers are often faced with. I hope you'll find these pages useful:
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What about CFS support groups? Are they any good?

GWVRP: Document Detail
Support groups should be just that: "support" -- not treatment. A reputable group will provide only scientific information, but beware of groups holding "sales meetings" for the latest recommended treatment.
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What has been the media's role in CFS?

GWVRP: Document Detail
The media has brought awareness to the illness through factual coverage as well as some inaccurate reporting. This is a very difficult disease to understand; even some medical professionals lack understanding of the illness. The media has often referred patients to organizations that can give them educational materials on CFS.
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Are there any good books on CFS?

GWVRP: Document Detail
There are approximately 15 books available on CFS which have been reviewed for medical accuracy and are now available through CHIRI, 3521 Broadway, K.C., MO 64111.
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Is ME/CFS Real - Or Is It Really All In The Mind?

Evidence : Is Myalgic Encephalomyelitis / Chronic Fatigue Sy...
One of the most common questions about this illness is whether Myalgic Encephalomyelitis / Chronic Fatigue Syndrome and Post Viral Fatigue Syndrome is actually real....
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What Is CFS/ME?

FM/CFS/ME RESOURCES - FAQ's About FM/CFS/ME
ANSWER: Chronic Fatigue Syndrome (CFS) Myalgic Encephalopathy (ME) is persistent debilitating fatigue of recent onset, with greatly reduced physical activity and some combination of muscle weakness, sore throat, mild fever, tender lymph nodes, headaches, and depression, not attributable to any other known causes; it is of controversial etiology.
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Will EPD fix my CFS?

EPD FAQ (Enzyme Potentiated Desensitization FAQ)
CFS (Chronic Fatigue Syndrome) is a tough nut to crack. A number of EPD Mailing List members report that EPD has not (as yet anyway) been fully effective against CFS. However, EPD has made enough difference in food, inhalant, and chemical side issues to be worthwhile. Even though EPD does not appear to be a CFS cure, it has reportedly been very beneficial at regaining strength and regaining a more normal lifestyle.
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