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Is There Hope For People With ALS/MND?

Frequently Asked Questions
ALS/MND wreaks a devastating effect on patients as well as their families. As they struggle to cope with the prospect of advancing disability and death, it consumes their emotional and financial reserves. It is a costly disease in its later stages, demanding both extensive nursing care and expensive equipment. But there is always hope. Recent medical discoveries have led to new drugs which seem to slow the progression of the disease.
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Frequently Asked Questions About ALS
ALS/MND can have a devastating effect on patients and their families. As they struggle to cope with the prospect of advancing disability and death, it consumes their emotional and financial reserves. It is a costly disease in its later stages, demanding both extensive nursing care and expensive equipment. But there is always hope. Recent medical discoveries have created new drugs that seem to slow the progression of the disease.
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What Is ALS/MND?

Frequently Asked Questions
Amyotrophic Lateral Sclerosis, a.k.a Motor Neuron Disease-is a rapidly progressive, fatal neuromuscular disease. It attacks motor neurons in the spinal cord and lower brain which transmit signals from the brain to the voluntary muscles throughout the body. When motor neurons die as a result of ALS, the ability of the brain to control muscle movement is lost. When muscles fail to receive messages, they weaken, atrophy, and die. There is no known cure.
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What Are The Symptoms Of ALS/MND?

Frequently Asked Questions
The groups of muscles affected and the order in which they are affected varies from one person to another. Early symptoms usually include tripping, dropping things, abnormal fatigue of the arms and/or legs, slurred speech, muscle cramps and twitches and uncontrollable periods of laughing or crying. The hands and feet may be affected first, causing difficulty in walking or using the hands for the activities of daily living such as dressing, washing and buttoning clothes.
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Who Is Liable To Get ALS/MND?

Frequently Asked Questions
Anyone can get ALS/MND. Most who develop ALS/MND are between the ages of 40 and 70. There are, however, cases of the disease attacking persons in their twenties and thirties. Generally though, ALS/MND occurs in greater percentages as men and women grow older. ALS/MND strikes men slightly more frequently than women. About one in 800 adult men, and one in 1,200 adult women die of ALS/MND. ALS/MND occurs throughout the world with no racial, ethnic or socioeconomic boundaries.
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Are There Different Types Of ALS/MND?

Frequently Asked Questions
There are three common classifications, and numerous sub-categories: Sporadic: the most common form of ALS/MND Familial: less than 10% of ALS/MND cases suggest genetic inheritance Guamanian: a high number of cases of ALS/MND occur in Guam and the Trust Territories of the Pacific
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What Causes ALS/MND?

Frequently Asked Questions
The cause of ALS/MND is not yet known. While many theories are being researched, at present neither a cure nor a means of prevention is known. In 1993, scientists announced in a paper published in the British journal "Nature" that they had isolated the gene associated with about 20% of the cases of the inherited form of the disease.
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Can You "Catch" ALS/MND?

Frequently Asked Questions
ALS/MND cannot be "caught" - it is not contagious. Though some scientists believe it is possible that ALS/MND is caused by a slow-acting or latent "virus", there is absolutely no fear that it is contagious: there is no increased incidence among medical personnel who deal with ALS/MND patients.
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Is there hope for people with ALS?

What is ALS - ALS Description
curren; back to top ¤At the moment, there is a drug trial being conducted that may prolong life minimally. Research is looking to find not only the cause of the disease so that a cure can be developed but also other medications or treatments that can help until a cure is found. With improved knowledge about ALS, healthcare providers and families can help people living with ALS live life more fully.
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Frequently Asked Questions About ALS
Amyotrophic Lateral Sclerosis or Motor Neurone Disease is a progressive, usually fatal neuromuscular disease. It attacks motor neurones in the spinal cord and lower brain which transmit signals from the brain to the voluntary muscles throughout the body. When motor neurones die as a result of ALS/MND, the ability of the brain to control muscle movement is lost. When muscles fail to receive messages, they weaken and waste away (atrophy).
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ALS MND Alliance - What Is ALS/MND?

BlogMetaFinder Search for als disease
ALS MND Alliance - What Is ALS/MND?What Is ALS/MND? Motor Neurone Disease (MND) is an all embracing term used to cover a number of illnesses of the motor neurone. Amyotrophic Lateral Sclerosis (ALS ... Thu, 07 DHMC | Media Services | Living with Terminal Illness: ALS DiseaseWhen the Blues Get you Down: Depression; The ABC's of STD's: Straight Talk about Sexually Transmitted Diseases; Overcoming Eating Disorders: A Recipe for Life; Defusing Teenage ..
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HOW COMMON IS ALS/MND?

Frequently Asked Questions About ALS
A normal population produces about 2 new cases per 100,000 every year. (A 1995 Dalhousie University Study found in that there was a 2.03 per 100,000 population incidence in Nova Scotia. As ALS/MND is considered terminal and incurable, death rates are very close to incidence rates.) According to the United States National Institute of Health, some 5,000 people in the USA are newly diagnosed with ALS each year. That's about 13 new cases every day.
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HOW IS ALS/MND DIAGNOSED?

Frequently Asked Questions About ALS
present there is no definitive means of diagnosis of ALS/MND. Most diagnoses are made by eliminating all other possibilities - ailments with symptoms resembling those of ALS/MND. Neurologists use a number of clinical tests to establish a profile, including blood testing, MRI (Magnetic Resonance Imaging) scans and EMGs (Electro Myographs).
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WHO IS LIKELY TO GET ALS/MND?

Frequently Asked Questions About ALS
Anyone can get ALS/MND. Most who develop ALS/MND are between the ages of 40 and 70. There are, however, cases of the disease attacking persons in their twenties and thirties. Generally though, ALS/MND occurs in greater percentages as men and women grow older. ALS/MND strikes men slightly more frequently than women. About one in 800 adult men, and one in 1,200 adult women die of ALS/MND. ALS/MND occurs throughout the world with no racial, ethnic or socioeconomic boundaries.
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WHEN WAS ALS/MND FIRST DISCOVERED?

Frequently Asked Questions About ALS
ALS/MND was first described in 1869 by Jean-Martin Charcot, an innovative French neurologist. The disease was first known as "Maladie de Charcot".
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Can creatine help people with ALS and what are the potential side effects?

Patient Services Frequently Asked Questions - The ALS Associ...
with any medication or dietary supplement, it is important to check with the physician managing your ALS care to discuss the pros and cons of adding any new drug or supplement. Creatine is a dietary supplement and is sold in most health food stores. A variety of companies produce creatine. Because it is not a drug, creatine does not fall under the control of the FDA for product claims or manufacturing purity.
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How many people have ALS?

FRONTLINE: so much so fast: what's als? | PBS
It is estimated that 30,000 people in the U.S. have ALS at any given time, with approximately 5,600 new cases diagnosed annually. More than 5,000 people die from the disease each year.
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What Is ALS?

Patient Services Frequently Asked Questions - The ALS Associ...
Amyotrophic Lateral Sclerosis (ALS) is a motor neuron disease, first identified in 1869 by the noted French neurologist Jean-Martin Charcot. Although the cause of ALS is not completely understood, the 1990's have brought a wealth of new scientific understanding about the physiology of this disease.
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How can I find a doctor knowledgeable and experienced in taking care of people with ALS?

Patient Services Frequently Asked Questions - The ALS Associ...
Selecting a physician to manage your ALS care will often be influenced by what is covered by your health insurance plan. If necessary, contact your insurance company to request approval to receive care at an ALS specialty clinic or center. Finding a doctor who is a "match" for you and your family is important. Individual styles and approaches to care will vary - despite equal medical skill and competence.
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How can people get more information about ALS and The ALS Association?

Media Frequently Asked Questions - The ALS Association
The ALS Association has a toll-free information and referral service available to patients, caregivers and family members, staffed by The ALS Association Patient Service Coordinators. The ALS Association Information and Referral number is 1-800-782-4747. To reach The ALS Association's Patient Services department by e-mail, contact alsinfo@alsa-national.org.
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