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Frequently Asked Questions

I have heard Elmiron referred to as an orphan drug why is this?

Frequently Asked Questions about Elmiron | Interstitial Cyst...
Elmiron is often referred to as an orphan drug primarily for two reasons. One is that it is the only drug of it's kind, in the sense that it's chemical properties are unique to it. Elmiron has no oral substitutes, and no similar drugs exist on the market at this time. As well it is the only FDA oral drug approved specifically for the treatment of IC.

What is Elmiron?

Frequently Asked Questions about Elmiron | Interstitial Cyst...
Elmiron is an FDA approved drug (since 1996) used in the treatment of Interstitial Cystitis (IC). Elmiron's chemical name is pentosan polysulfate sodium. It is manufactured in 100mg doses, taken in pill form. In the United States it is manufactured by Alza Pharmaceuticals. Elmiron is a fairly new drug treatment for IC. At it's root Elmiron is a very weak anticoagulant (blood thinner) when administered through an IV, however taking it orally as IC patients do, has very little of this action.

What is Orphan Drug Status?

FAQ
Orphan Drug Status is given to certain drugs undergoing development in the pharmaceutical industry. Find out what Orphan Drug Status is and what incentives are available to biotech companies obtaining this designation from the US FDA.

I've heard squirrels referred to as vermin. Is this true?

A Squirrel Place F.A.Q. Section
Squirrels are considered vermin, usually by insurance companies. They use the definition of vermin, "birds or mammals that are difficult to control", as a means to preclude a claim for the damage a squirrel can do.Index

I’ve heard that the EAP deals mostly with drug problems. Is this true?

Frequently Asked Questions
No. People who use EAP services have everyday problems which have the potential of getting out of hand. Some of these may include:

Will Elmiron cure me?

Frequently Asked Questions about Elmiron | Interstitial Cyst...
the cause/causes of IC are unknown, a definitive "cure" also eludes medical science, so the short answer is no, Elmiron will not cure you. However, it may help relieve your IC symptoms. Many patients find that Elmiron allows them to regain a sense of "normalcy" in their lives, as it may decrease many IC symptoms such as frequency, urgency and bladder/pelvic/lower abdominal pain.

Is Elmiron expensive?

Frequently Asked Questions about Elmiron | Interstitial Cyst...
The cost of Elmiron is around $160-$200 American dollars per one month supply (90 capsules), and approximately $120 in Canada per one month supply. No generic form of Elmiron is available yet. So yes, it is more expensive than many other medications, however most drug schemes and health plans do cover Elmiron and may be able to help lower the cost.

What are the side effects of Elmiron?

Frequently Asked Questions about Elmiron | Interstitial Cyst...
Overall most patients easily tolerate Elmiron. The most frequently occurring side effects are gastrointestinal issues such as diarrhoea and nausea. Other symptoms may include dizziness, headache, abdominal pain, nosebleed, sore throat, lethargy and rash. Two serious side effects that have been reported are temporary hair loss, often in patches (hair re-grows when Elmiron is discontinued) and liver dysfunction.

I've heard of rugby referred to as a "social sport." What does this mean?

Frequently Asked Questions
Put simply, this means two things: that rugby players are encouraged to "leave it on the field"; and that rugby is a sport that often fosters intense comraderie between team members. By "leaving it on the field," we mean that, no matter what happens during a match, opposing teams socialize with each other afterwards.

I have heard that reclassifications are commonly referred to as "Promotions"?

FAQ
It is a reclassification of the position, which was based on the characteristics of the position, not of the

What is Elmiron's chemical compound (name)?

Frequently Asked Questions about Elmiron | Interstitial Cyst...
beta;-D-Xylan (1->4) 2, 3 bis (hydrogen sulfate), sodium salt. It has a molecular weight of 4,000-6,000 Dalton. Elmiron is a white, odourless powder, which is soluble in water. It is a semi synthetic Heparin like drug (macromolecular carbohydrate) which resembles glycosaminoglycans chemically, and in it's overall structure.

What is the recommended dosage of Elmiron?

Frequently Asked Questions about Elmiron | Interstitial Cyst...
mgs taken 3 times daily. Elmiron is manufactured in 100mg white capsules that have a hard gelatine coating. Some IC patients note an adverse reaction to gelatine and therefore opt to remove the medication from the capsule prior to consuming it.

Is Elmiron available worldwide?

Frequently Asked Questions about Elmiron | Interstitial Cyst...
No, Elmiron is currently available in only a handful of countries, despite its successful reputation and FDA (should it specify for people not from North America that the FDA is the United States Food and Drug Administration?) approval.

Who should be referred to ASAC?

UM ASAC Frequently Asked Questions
A person who needs diagnostic clarification to investigate the possibility of an autism spectrum disorder A person previously diagnosed with an autism spectrum disorder, in need of re-evaluation and/or updated treatment recommendations Individuals exhibiting impairments in social interaction, communication, and/or restricted repertoire of activity and interests

What is referred pain?

FAQ
Referred pain is a type of pain that is experienced by a person in a region of their body that does not contain the source of that pain. For example, its common knowledge that a person having a heart attack will often experience pain in the left arm or shoulder. The source of the pain is actually the heart muscle, but the pain is "referred" or projected to the left arm or shoulder. In general, about 3/4 of all trigger points produce referred pain that is felt in an adjacent region of the body.

I heard your camp referred to as a Christian Camp, can you explain?

About Face Youth Camp -- FAQ
The children have various times where they have some 'controlled free time', for letter writing, reading, watching a video rental (always a motivation story) or participating in 'bible studies' with camp personnel. The religious activities are purely optional participation for the campers, but we are proud to say we offer the opportunity!

I've heard SAP referred to as an ERP solution. What is ERP?

FHRIS
ERP stands for Enterprise Resources Planning. An ERP solution means the product integrates all (or most) functionality needs into one piece of software. In the past, for instance, FPPS interfaced with a number of what were called "satellite" systems that provided functionality in different areas of human resources management. One satellite system provided functionality in recruiting, another in classification, another in training.

Can I take Elmiron while I am pregnant or breast-feeding?

Frequently Asked Questions about Elmiron | Interstitial Cyst...
If you are considering getting pregnant or are pregnant or breast-feeding it is best to consult your doctor before continuing on Elmiron. While no birth defects have been seen in humans who take Elmiron, animal studies have shown Elmiron (pentosan) may pose a risk to the fetus. It is not yet known if Elmiron is excreted through the breast milk, however most medications do (in small amounts) pass through the milk and into the baby's system.

Is Elmiron safe for children with IC?

Frequently Asked Questions about Elmiron | Interstitial Cyst...
FDA approved dosage of Elmiron for children has not been established yet. However many physicians will prescribe Elmiron to children with IC and no higher incidence of side effects have been reported.
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