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Frequently Asked Questions

Is JXG the best name for the disease?

Frequently Asked Questions About Ben
In my opinion, no. LCH used to be described by three different symptomatic presentations and led to a single disease being called by at least three different names (Eosinophilic granuloma, Hand-Schuller-Christian syndrome, Letterer-Siwe disease).

What is the best way to deal with bacterial and fungal disease on my orchids?

ORCHIDS.COM : SUPPORT : FAQ
The most efficient method to treat bacterial and fungal disease is the regular use of a systemic agent such as Phyton 27. The agent will be absorbed by the roots of the plant and then carried throughout the plant. Once the Phyton 27 is absorbed by the plant it will remain in the plant~s system for months.

Why is JXG called JXG?

Frequently Asked Questions About Ben
The disease is named after the skin lesions that often accompany it and after the fact that most of the people that get it are young. The skin lesions are usually a yellow to brownish-red color, with a raised waxy appearance. Here is the breakdown of the name: X - Xantho for Xanthoma or Xanthomas - The word "xanthoma" is made up of "xanth-" from the Greek roots "xanthos" (yellow) and "oma" (swelling) = a yellow swelling. A xanthoma is a circumscribed yellow swelling, a yellowish nodule.

How did we find out he had JXG?

Frequently Asked Questions About Ben
Ben had a biopsy of his scalp and a brain biopsy of his large central lesion (it was very hard for us to decide to have a brain biopsy). The tissue was analyzed by several pathologists who diagnosed Ben with JXG.

What the heck is JXG?

Frequently Asked Questions About Ben
It is a disease that almost nobody has heard of. It is VERY closely related to another disease called LCH. JXG is a disorder of white blood cells. We do not know what causes it. The disease results in lesions, masses or tumors (all different words for basically the same thing). The lesions consist of abnormal growths or congregations of white blood cells called histiocytes. It happens in young children more frequently than older people - no one knows why.

Is JXG a Histiocytosis?

Frequently Asked Questions About Ben
Yes. It is different from LCH in that instead of involving Langerhans cells (probably abnormal Langerhans cells to be clear), it involves dermal dendrocytes (or dermal dendritic cells).

What is the best treatment for allergic disease?

allergyreliefkit.com
The most important thing in treating any human disease is receiving an exact and accurate diagnosis of the problem. For most all patients suffering from allergic diseases such as hay fever, sinus headaches, asthma and food allergy this means a visit to a Board Certified specialist in allergy and asthma.Educated victims of allergy and asthma do much better in life than those patients who are under-diagnosed and under-treated.

WHAT ARE THE BEST CONSERVATIVE AND PREVENTIVE MEASURES FOR CHRONIC VEIN DISEASE?

FAQ - VEIN DISORDERS CENTER - specializing in office surgery...
People with chronic vein problems such as severe varicose veins and chronic venous insufficiency should follow the rules also known as the "RIVLIN'S RULES" set forth by Mr. Stanley Rivlin, Consultant Surgeon of London, UK. It is my privilege to present the rules (accompanied by original illustrations that depict him in the Instructor 's role) to the readers of this site. Needless to say I have the personal permission of Mr.

What is the best way to prevent gum disease?

River Oaks Dental Arts - FAQ
Conscientious removal of plaque by flossing, brushing and regular professional cleanings will minimize your risk of gum diseases. However, there are other factors that can affect the health of your gums, such as stress, diabetes, genetics and pregnancy.

How common are LCH and JXG?

Frequently Asked Questions About Ben
They are both VERY rare and subsequently not very well understood. For LCH the statistics are quoted around 1 in 250,000 people will get it in some form or another. For multisystem JXG the occurrence rate is probably less than 1 in 10,000,000. What adds confusion to this is the different presentations of the disease. Many people get a single lesion, and in that form, the disease may not be life-threating.

Is JXG treated differently than LCH?

Frequently Asked Questions About Ben
No, because of the lack of understand with JXG. There are only 36 reported cases of disseminated or multisystem JXG and therefore a very small experience base. Since is is somewhat similar to LCH, they treat it like LCH. This is true up to a point, you treat them the same early on. There are some drugs that may be better at tackling LCH than JXG and visa versa.

Can LCH and JXG come back?

Frequently Asked Questions About Ben
Yes. After treatment and remission, LCH quite commonly returns. We would most likely treat with chemo again. JXG on the other hand, tends not to return with new lesions.

What causes LCH or JXG?

Frequently Asked Questions About Ben
No one really knows. There are very tenuous links to a few things (thyroid disease, infections in the first few weeks of life, not getting immunizations and maybe genetics). It is mostly in very young children. Most cancers and/or disease are inherited (our genes), caused by the environment (chemicals, what we eat, where we live), radiation (sun, electronics,...) or by viruses and bacteria. We do not know what is the case for histiocytosis.

Is Crohn's disease an autoimmune disease?

Frequently Asked Questions
A malfunction in the immune system is certainly a part of Crohn's disease. This may be an inability to "turn off" the immune system after it "turns on" for an appropriate reason. Or, the immune system may "turn on" for the wrong reason. Immunosuppressive medications used to keep individuals from rejecting transplanted organs have been shown to be effective in treating Crohn's disease. These factors have led many researchers to characterize Crohn's disease as autoimmune.

Is Heartworm Disease a serious disease in cats?

FAQ
Heartworm disease is a serious disease in cats especially in males, and outdoor cats. It is diagnosed in both indoor and indoor-outdoor cats. It is suggested that the reason for finding heartworm positive cats is that cat's nature may swallow different mosquitos or any thing that flies which may be the vector. The clinical signs and diagnosis is different from that in dogs.

What is Bowen's disease?

FAQ
Bowen's disease is a precancerous lesion, the malignant cells being restricted to the top skin layer. It appears as a red, scaly or crusted lesion, and may be located anywhere on the skin, including non-sun-exposed skin surfaces.

What is Legionnaire's disease?

Legionnaire's disease is a form of pneumonia caused by a bacterium, Legionella pneumophilia. It was first discovered following an outbreak at an American Legion convention in a Philadelphia hotel in 1976. However, after the organism was isolated, some earlier pneumonia outbreaks were investigated and it was verified that earlier cases had occurred.

How dangerous is the disease?

Sars - FAQ - Frequently Asked Question
Between 80 percent and 90 percent of patients get better on their own in about a week. The other 10 percent to 20 percent get worse, with many ending up in intensive care and requiring mechanical ventilators to help them breathe. About 6 percent die.

What is Canavan disease?

Canavan Research Illinois - Frequently Asked Questions About...
Canavan disease is a rare and devastating fatal childhood neurodegenerative disorder affecting the formation of myelin, the white matter of the brain. Canavan disease is a progressive leukodystrophy.
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