EMS is not a contagious disease. There should not be fears about that. Naturally, chronic diseases such as EMS may have profound effects upon close family members of the sick person and might contribute to feelings of depression, anxiety, problems with children accepting the illness, or other physical and emotional conditions in loved ones. But this occurs with any chronic illness that goes on for many years - which is what a chronic illness is, an ongoing one.

In Canada, 11 cases have been "confirmed" according to the authorities there. "All but one of the victims had obtained the supply of L-tryptophan from U.S. sources" according to the Canadian report submitted to Congress in July, 1991. Furthermore, tryptophan was available only as a prescription drug in Canada and the "one product approved for sale has not been associated with EMS to date [that is, July 1991].

There were approximately 105 to 125 cases in Germany; at least 25 cases in France; at least 22 cases in Belgium; 11 cases reported by 1991 in the UK and an additional 7 later (however, not all fit the criteria for EMS), several in Italy and perhaps in one or more other European nations; several in Israel; two cases in Australia; one case in New Zealand; and various reports in Japan of from two to 10 or 12 cases, depending on the source.

People with EMS can die of many causes, like anyone - such as being in an auto accident. Some with EMS have died of complications of the disease later on in the chronic phase of the disease, and clearly certain deaths were associated with having EMS, which contributed to the deaths, or caused premature death. In some cases, it is hard to know whether or not EMS has played a role directly or indirectly in cause of death.

You can read the articles on the Information Page (web sites). Any body system may be affected potentially in those with EMS, but it differs from person to person. Some may have mild disease with only one or two systems somewhat affected, while others may be extremely affected with multiple body systems affected due to EMS. To read the articles on the Information Page by experts: Information Page

I have read reports of a female child who was four years old who got EMS (she was taking it upon advice of a pediatrician, as I recall). Also, there were other children using it for various reasons, often along with one or both parents. These persons are now in their teen years - there are likely not many of them. And, as mentioned in the previous question, there were at least a few persons who might have contracted EMS while in the womb or via nursing.

Yes. At least 75% of those getting EMS were women. I have seen figures that place the percentage higher.

It varies from person to person, but EMS may be similar to Fibromyalgia, Chronic Fatigue Syndrome, Lupus, Scleroderma, Multiple Sclerosis, Toxic Oil Syndrome, and other similar autoimmune diseases.

The code is 710.5. If your doctor does not know this, make him or her aware of it. Especially if you are contemplating getting Social Security Disability or have to undergo reviews, it's good to have your doctor use the code periodically when you see him so that the diagnosis is documented in your records. .

They are quite similar in many respects. However, Fibromyalgia, according to what Dr. Peter Callegari told me, and wrote on this in a national newsletter, does not cause scarring or organ or tissue damage like that which is often found in EMS. It is possible to get Fibromyalgia secondary to EMS, and it's possible to have had Fibromyalgia prior to getting EMS. Not everyone with EMS gets Fibromyalgia. Dr.

This is an easy and a hard question. The easy answer is YES. I've personally heard from scores of persons who have had adverse reactions to 5-HTP that sound like EMS or an EMS-like disorder. Did all of those people remain sick and develop a chronic disease as EMS has become? No. Did some? Yes. In fact, around 2002 or 2003, one person diagnosed with EMS from usage of 5-HTP was preparing to go to trial. I heard that from good sources; the person lived in Ohio. I don't know the outcome of the case.

This is a difficult and very individualistic area. However, there seems to be a definite propensity to developing Fibromyalgia and/or Chronic Fatigue Syndrome due to having EMS.

Yes, at least a few women with EMS reported to me that they had normal children after getting EMS, and that the children have no symptoms of EMS and appear to be healthy thus far. Many women were past the years of childbearing when they got sick; others elected not to have children because of having EMS.. So, there is not a lot of data to date on this particular question. Of course, some women opted to adopt children because of having EMS.

Probably not, according to medical experts. It is best not to donate blood or be an organ donor, according to the medical authorities with whom I discussed this issue. But I will add this: Although Dr. Callegari, a former member of the NEMSN Medical Advisory Council, said that persons with EMS should NOT donate blood, and probably should not donate organs, he did say that in some persons, there might be two possible exceptions to organ donation: the kidneys and the eyes.

Yes, there are people who are related who got EMS, including first cousins, parent and one child, both parents and one child, parent and two children (son and daughter), and other combinations. Also, there are husbands and wives who both have the disease (though they are not, of course, related by blood.) I myself have a cousin who got EMS when she was about 75 years of age. I was 39 when I got it, and neither of us knew the other had used tryptophan until later.

EMS is described as being autoimmune-mediated or by some as autoimmune. It definitely is a disease that involves autoimmunity.

The government stopped counting at 37 deaths earlier in the history of EMS; however, likely more persons had died by their somewhat arbitrary cut-off date than 37 - perhaps as many as 50 or more directly as a result of EMS. Really, it is something that is impossible to know for sure - that by such and such a date in 1991 or 1992 ____ number of persons had died of EMS directly or indirectly. Likely, some people died without the true cause ever being known.

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This is a question often asked of us. Developed in England over 40 years ago by a team of scientists and doctors, muscle stimulators is used extensively in hospitals, beauty salons, health clubs and spas as part of the beauty regime and by physiotherapists and sports medicine to treat those annoying sports strains and sprains. Electrical Muscle Stimulation is quite safe for any individual capable of taking normal exercise.